7.09.2008

Wednesday, 10:53 PM

To everyone who's been calling in a panic: I'm sorry I haven't posted recently. We've all been taking some much needed time to relax, adjust and remember what it's like to be home. Here's the latest:

We ended up in the ER on Saturday, because LP's catheter tubing was leaking. They switched it out and we've been mostly okay ever since, although he's been running around like a little maniac and somehow managed to put a small tear in the bag itself tonight. Daddy fixed it with duct tape, LOL.

The whole family went to see the fireworks on the 4th and we bumped into LP's favorite day care provider and her family. It was soooooo wonderful to see them and we had a great time catching up.

Yesterday was the Renal Clinic and while we weren't able to get the bladder test done that we needed, they've decided that Little Pom will have an MRI (without contrast dye) to make sure that his Non-neuropathic, neuropathic bladder is indeed "non-neuropathic" and not plain old "neuropathic." We have about 7 days left for this catheter, so I'm optimistic that we'll have the remaining procedures and his 2nd surgery by next week sometime. I got his labwork today and his "Important Kidney Number" has gone back up a bit, from 3.4 when we were discharged to 4.7 yesterday. When we go back next week, they'll check it again and hope he was just dehydrated.

At the clinic we broached the subject of a pre-emptive transplant and the Nephrologist was thrilled! He said that usually it's difficult to broach the subject of something as radical as a transplant to a family, but that he's totally willing to pursue that path with us. We're supposed to be contacted by the pre-transplant coordinator soon. In the meantime:

Are you bloodtype A-?
Do you have an extra kidney lying around?
Let us know! :-P

In the meantime, our insurance denied our request for a digital blood pressure machine, even though I'm hearing impaired and can't monitor LP's blood pressure with the cuff & stethescope they gave us. So, if someone happens to see a good deal on one, let us know! I need to find something reasonably priced before Daddy leaves for Arizona in September.

Some good news: The Dancing Queen is home and already springing into action, monitoring Little Pom's meds and keeping us on our toes. Welcome home, DQ!!

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